Posted: September 10th, 2023

Steven And Marisol Are A Young Married Couple Who Are Concerned About Passing Genetic Diseases

Steven And Marisol Are A Young Married
Couple Who Are Concerned About
Passing Genetic Diseases To Their
Children.
The following case for discussion is from the eText, chapter 18, page 297:
Steven and Marisol are a young married couple who are concerned about passing genetic diseases to
their children. Members of Steven’s family have been diagnosed with Huntington’s disease, an incurable
genetic disorder that causes cognitive problems, diculties with movement that ultimately require fulltime nursing care, and reduced life expectancy. Members of Marisol’s family have tested positive for a
mutation of the BRCA genes that are strongly associated with breast and ovarian cancer.
At a family reunion, they are discussing their decision to use in vitro fertilization and preimplantation
genetic screening of embryos. Seven’s cousin, Valerie, is appalled. She is opposed to the idea of in vitro
fertilization and to the entire idea of genetic screening.
Valerie says, “You can’t just choose the babies you want to have. God will only give you the challenges He
knows you can handle. And if a child is born with a disease, your job is to love that child, no matter what.”

Steven is speechless. But Marisol is not. “But if we can guarantee that our child is healthy and will live a
happy life, shouldn’t we do that? We don’t want to raise a child who is doomed to genetic diseases.”
Valerie shakes her head. “There is no way to know,” she says. “Kids get sick and die. Some who have
diseases get better. You can’t control everything. And besides, that test-tube baby stu is really
expensive. How can you aord it?”
Now Steven replies, “We want to invest in this procedure now because it might save money in the long
run. I’ve seen how much Huntington’s costs a family – so have you. I’d rather pay to prevent it now than
have to deal with the costs later.”
Valerie responds, “That sounds really rude. It sounds like you resent people who get sick and need your
help. The whole thing is very selsh.”
Questions for discussion:
What is good or bad, right or wrong, with IVF?
If you accept the good of IVF must you also accept the good of designer babies or selecting the gender of
the baby you want to have (these options are available to couples
today:https://www.youtube.com/watch?v=eWhfsiXzmA4 (https://www.youtube.com/watch?
v=eWhfsiXzmA4)?
Explain your reasoning.
Is it wrong to want to prevent genetic disease? Is it a wise investment? Is it selsh to want to control your
child’s genes? Explain your answer.
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